Melanie Downey

İnceleme National organization for rare...

The National Organization for Rare Disorders (NORD...

The National Organization for Rare Disorders (NORD) has been instrumental in providing support and resources for individuals and families affected by rare diseases. Their website, rarediseases.org, offers a wealth of information and guides on different rare diseases, available treatments, and clinical trials. The organization has been actively advocating for more research funding and promoting awareness about rare diseases. I have found their resources to be informative and helpful in navigating the complexities of rare diseases. Overall, I believe NORD is doing a commendable job in supporting the rare disease community.